Ignorance or Refusal: Determinants in the individual’s choice for palliative care

(Credit: Unsplash)

This article was exclusively written for The European Sting by Ms. Aryane Bastos de Souza, a student of the fourth period of Medicine of the State University of Rio Grande do Norte-UERN, Brazil. She is affiliated to the International Federation of Medical Students Associations (IFMSA), cordial partner of The Sting. The opinions expressed in this piece belong strictly to the writer and do not necessarily reflect IFMSA’s view on the topic, nor The European Sting’s one.


The lack of knowledge, as well as the distorted view regarding palliative care, corroborate the refusal of this line of care. Many patients and family members believe it is synonymous with abandonment and neglect with life when they choose this palliative path.

  However, unlike “being created to die”, the user will be assisted in a humane way. According to the World Health Organization (WHO) in 1990 – with a redefinition in 2002 – palliative care was defined as an approach that improves the quality of life of patients and families facing problems associated with diseases, through the prevention of pain and relief of suffering, through early identification, correct assessment and treatment of pain, and other physical, psychosocial and spiritual problems.

  In addition, palliative care encompasses a network of services and care and a multidisciplinary and interdisciplinary team, which are not available equally to all Brazilian citizens, which makes it difficult for users and their families to adhere.

  However, the Ministry of Health published Resolution MS-CIT No. 41/18 that regulates the provision of palliative care as part of continuous care integrated within the scope of the Unified Health System (SUS).   Thus, through this resolution, the aim is to guarantee the offer of this practice to individuals from the diagnosis of the disease to the terminal phase, allowing more quality of life for patients, whose disease has no cure.

  Furthermore, the standard defines that palliative care must be available everywhere in the network, from basic, home, outpatient, hospital, urgency and emergency care.

  However, one more aggravating factor arises, the issue of adequate housing to receive this patient, who will need an appropriate environment, greater attention on the part of his family and health professionals to provide assistance at home.

  In this context, once again, the obstacle to the issue of poor income distribution among Brazilian citizens and regions becomes noticeable.

  Given the above, it is up to the health professional to evaluate each case individually, to communicate clearly and objectively the nuances of each choice to the user and their caregivers.

  From then on, therefore, adherence to palliative care becomes more efficient, by providing responsible, respectful and honest assistance to patients and their families.

References

BRASIL. Resolução nº 41, de 31 de outubro de 2018. Dispõe sobre as diretrizes para a organização dos cuidados paliativos, à luz dos cuidados continuados integrados, no âmbito Sistema Único de Saúde (SUS). Brasília, 2018. Available from: http://www.in.gov.br/web/guest/materia/-/asset_publisher/Kujrw0TZC2Mb/content/id/51520746/do1-2018-11-23-resolucao-n-41-de-31-de-outubro-de-2018-51520710. Access on  20  Dec.  2020.

MATSUMOTO, D. Y. Cuidados Paliativos: conceito, fundamentos e princípios. In: CARVALHO, R. T.; PARSONS, H. A. (Org.) Manual de Cuidados Paliativos. São Paulo: Academia Nacional de Cuidados Paliativos (ANCP), 2012. p.23-30.

WORLD HEALTH ORGANIZATION. National cancer control programmes: policies and managerial guidelines. 2.ed. Geneva: WHO, 2002.

About the author

Aryane Bastos de Souza is a student of the fourth period of Medicine of the State University of Rio Grande do Norte-UERN. She is a Local Coordinator at the International Federation of Medical Students’ Associations (IFMSA). Participant in the ECAH extension project (Teaching Children Aspects of Hygiene). Participant of the Collective Health Study Group. Research Coordinator at LAPED (Pediatric Academic League). Secretary and Director of Communication of LATOCE (Academic League of Operative Technique and Experimental Surgery).

She believes that education and humanization are capable of transforming public health and alleviating inequalities.

the sting Milestones

Featured Stings

Can we feed everyone without unleashing disaster? Read on

These campaigners want to give a quarter of the UK back to nature

How to build a more resilient and inclusive global system

Stopping antimicrobial resistance would cost just USD 2 per person a year

Art has the power to change the world, says this renowned Iranian muralist

European Commission welcomes the positive assessment about how it has managed the EU budget

New seat projections for the next European Parliament EU28

FROM THE FIELD: Liberia boosts efforts to guard against rising seas

3 ways to protect your mental health during – and after – COVID-19

Protecting the ocean is key to fighting climate change

MEPs call for binding 2030 targets for materials use and consumption footprint

More than one million sexually transmitted infections occur every day: WHO

Brexit: visa-free access to the EU for UK nationals and to the UK for Europeans

‘Good enough’ global cooperation is key to our survival

5 key themes for reforming the EU, as elections loom

Mental Health: Role of the individual for their well-being in the pandemic

EU leaders prepare timetable and structure for EU budget negotiations

Whale populations are slowly recovering – this is why

EU’s VAT system further equipped to tackle fraud in e-commerce and to help small businesses grow

State aid: Commission approves €380 million German rescue aid to Condor

Member States agree to Commission proposal to support Irish beef producers impacted by market uncertainty

Got the blues? Head for some green spaces

This is how Copenhagen plans to go carbon-neutral by 2025

Meet Cipta: the comic book hero using her powers to tackle bullying in schools

Further reforms will promote a stronger and more inclusive Hungarian economy

UN chief appeals for calm as Mali presidential election draws to a close

Hatred ‘a threat to everyone’, urges Guterres calling for global effort to end xenophobia and ‘loathsome rhetoric’

Health inequalities in the 21st century

Here’s why infrastructure will make or break our response to climate change

Autonomous weapons that kill must be banned, insists UN chief

Mobile Technology saving lives, the way forward

Sassoli to EU institutions: “Be brave on EU recovery plan”

Rule of law in Hungary: Parliament calls on the EU to act

Mental health: fighting the hidden pandemic

5 key concepts for blockchain newbies

Do doctors need to know their patients’ sexual orientation and gender identity?

On World Health Day, new report says the world needs 6 million more nurses

More women than ever before are running for political office in the US

Climate change: cutting the good by the root?

Creative Europe: 30 years of support to European films and cultural and creative media works

Commission proposes to purchase up to 300 million additional doses of BioNTech-Pfizer vaccine

What can the military teach us about keeping the lights on?

Venezuela migrant crisis begs a ‘coherent, predictable and harmonized’ response: UNHCR

Young people are not a nameless, faceless mass. So why do we treat them as such?

Commission presents far-reaching anti-tax evasion measures

Getting people with disabilities into work requires data

Why cybersecurity should be standard due diligence for investors

UN chief hails Libyan leaders’ agreement to hold general election

UN chief appeals to G7 leaders for ‘strong commitment’ and political will to tackle climate emergency

Illegal fishing: EU lifts Taiwan’s yellow card following reforms

Vulnerable children face ‘dire and dangerous’ situation on Greek island reception centres, UNICEF warns

To win combat against HIV worldwide, ‘knowledge is power’, says UNAIDS report

Antitrust: Commission consults stakeholders on guidance for national courts when handling disclosure information

How digital is your country? Europe needs Digital Single Market to boost its digital performance

New neighbours: Could Venus really be home to alien life?

Coronavirus: Commission proposes €4.5 million to support over 5,000 dismissed tourism workers or self-employed in Estonia

Moving from a promise made in Sweden towards hope for peace in Yemen

An alternative to the future of antimicrobial therapy

Here’s how the EU is doing on gender equality

FROM THE FIELD: Enslaved Guatemalan indigenous women wait for reparations

UN boosts humanitarian appeal to help tackle Zimbabwe’s ‘worst-ever’ hunger crisis

Norway is returning Easter Island artefacts to Chile (Will Britain ever return the marbles to Greece?)

As the year closes out, UN political chief talks the art of diplomacy – and crises to watch in 2019.

Refugees in Greece: MEPs demand solidarity, warn about impact of health crisis

More Stings?

Advertising

Speak your Mind Here

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out /  Change )

Google photo

You are commenting using your Google account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

Connecting to %s